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Brain Tumor Survival Rate Study Google Forms .pdf


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1/7/2016

Brain Tumor Survival Rate Study ­ Google Forms

gujunilesh@gmail.com

Edit this form

6 responses
View all responses

 Publish analytics

Summary

Your Information
Your role
16.7%
16.7%

16.7%

16.7%
33.3%

Patient

2

33.3%

Caregiver ­ Parent

1

16.7%

Caregiver ­ Spouse

1

16.7%

Caregiver ­ Child

1

16.7%

Caregiver ­ Extended Family

0

0%

Caregiver ­ Friends

0

0%

Medical (Doctor, Nurse, etc)

0

0%

Other

1

16.7%

Patient's Information
Gender
Male

3

50%

Female

3

50%

https://docs.google.com/forms/d/1ykR59zD2sg3hVlMVOXSn86HHYcqxWOSUdhcKNfRxvnA/viewanalytics#start=publishanalytics

1/15

1/7/2016

Brain Tumor Survival Rate Study ­ Google Forms

50%

Date of Birth
Jul 1942

10

Jun 1956

6

Aug 1956

24

Nov 1964

30

Sep 1972

10

Jun 1981

21

50%

Age when Initially Diagnosed
34
42
50
57
59
73

Patient's Location
South Africa
St Louis, MO
Benton Ky. USA
Czech
Philadelphia, PA, USA
Chicago, IL

Race

https://docs.google.com/forms/d/1ykR59zD2sg3hVlMVOXSn86HHYcqxWOSUdhcKNfRxvnA/viewanalytics#start=publishanalytics

2/15

1/7/2016

Brain Tumor Survival Rate Study ­ Google Forms

White
Black
Hispanic
Middle Eastern
Asian
South Asian (… White

5

83.3%

Black

0

0%

Hispanic

0

0%

Middle Eastern

0

0%

Asian

0

0%

South Asian (Indian)

1

16.7%

Other

0

0%

Other
0

1

2

3

4

What led to the initial diagnosis?
Neurological symptoms related to balance and coordination.
Seizures/vomiting/headache/insomnia
Regular eye doctor exam
Seizure, Headaches, Double Vision.
Seizure
severe vertigo

Does the patient have family members that have cancer? If so, what kind of
cancer?
Mother had leukemia and died at the age of 42.
Mother and sister ­ breast cancer
Yes Lung, and skin.
No
lung cancer ­ granddad

Was patient under stress prior to initial diagnosis?

https://docs.google.com/forms/d/1ykR59zD2sg3hVlMVOXSn86HHYcqxWOSUdhcKNfRxvnA/viewanalytics#start=publishanalytics

3/15

1/7/2016

Brain Tumor Survival Rate Study ­ Google Forms

33.3%
16.7%

Alot of stress

3

50%

Moderate stress

2

33.3%

Little stress

1

16.7%

No stress

0

0%

50%

Did patient exhibit any signs of Anxiety/Depression prior to initial diagnosis?

33.3%
16.7%

50%

Yes, depression.

0

0%

Yes, anxiety.

3

50%

Yes, both depression and anxiety.

0

0%

No

2

33.3%

I don't know

1

16.7%

Any hypothetical factors that may have led to a growth of a brain tumor in this
patient?
I'm not sure i'm understanding this question, but i will try to answer. My mom has always
been a kind hearted peace maker. She never liked confrontation, i feel she internalized a
lot of things that most of us would blow up or be very verbal about. Never drank or
smoked, No drug use other than being on blood thinners for approx. 5 years.
radiation to the left cheek in 1957 for a hemangioma
My only gut instinct was a combative boss who raised daily stress levels
Stress

Date of death

Initial Diagnosis
https://docs.google.com/forms/d/1ykR59zD2sg3hVlMVOXSn86HHYcqxWOSUdhcKNfRxvnA/viewanalytics#start=publishanalytics

4/15

1/7/2016

Brain Tumor Survival Rate Study ­ Google Forms

Date of initial diagnosis
Aug 2013

30

Jul 2014

15

Apr 2015

5

Oct 2015

14

Nov 2015

20   25

Hospital administering care
Baptist health Paducah Ky
Siteman Cancer Center
UPenn
Rush University Med Center

Tumor Details
Tumor diagnosed at grade?

66.7%

33.3%

Grade 1

0

0%

Grade 2

0

0%

Grade 3

2

33.3%

Grade 4. (Glioblastoma Multiforme)

4

66.7%

Tumor type?
Primary

6

100%

Metastatic

0

0%

https://docs.google.com/forms/d/1ykR59zD2sg3hVlMVOXSn86HHYcqxWOSUdhcKNfRxvnA/viewanalytics#start=publishanalytics

5/15

1/7/2016

Brain Tumor Survival Rate Study ­ Google Forms

100%

How much of the tumor was surgically resected?
90
98
0
35
100

Location of tumor

Frontal Lobe
Parietal Lobe
Occipital Lobe
Temporal Lobe
Limbic System
Insula
Other
0.0

0.5

1.0

Frontal Lobe

0

0%

Parietal Lobe

3

50%

Occipital Lobe

1

16.7%

Temporal Lobe

1

16.7%

Limbic System

0

0%

Insula

0

0%

Other

2

33.3%

1.5

2.0

2.5

If a tumor test took place, did it result in any identifiable tumor markers?
Biopsy only; no markers identified
IDH 1 pozitive
EGFRVIII
EGFR

https://docs.google.com/forms/d/1ykR59zD2sg3hVlMVOXSn86HHYcqxWOSUdhcKNfRxvnA/viewanalytics#start=publishanalytics

6/15

1/7/2016

Brain Tumor Survival Rate Study ­ Google Forms

Any post surgery effects? If so, what effects?
Initially left side weakness and less left side peripheral vision. All deficits have since
gone away.
Visual Field Cut, Problem Solving.
None
Partial loss of vision in both eyes, balance issues.
headaches, partial right side paralyzes

Therapy
Were Gliadel Wafers Inserted?
Yes

0

0%

No

5

100%

100%

Was radiation therapy conducted?

16.7%

83.3%

Yes, with Photon.

5

83.3%

Yes, with Proton.

1

16.7%

No

0

0%

If radiation therapy was used, what was the dosage?
30 weeks
60
IMRT for 6 weeks
https://docs.google.com/forms/d/1ykR59zD2sg3hVlMVOXSn86HHYcqxWOSUdhcKNfRxvnA/viewanalytics#start=publishanalytics

7/15

1/7/2016

Brain Tumor Survival Rate Study ­ Google Forms

Not sure; 5 days/wk over 6 wks

Was chemotherapy conducted?

100%

Yes, with Temodar/Temozolomide

6

100%

No

0

0%

Other

0

0%

If chemotherapy was used, what was the dosage?
12 cycles @ 440mg 5 days per 28 dyas
150
only 6 weeks during the radiotherapy 120 mg/day
120/200
150 mg then 270 mg

Was immunotherapy conducted?
Yes

1

16.7%

No

5

83.3%

1

16.7%

83.3%

16.7%

If immunotherapy was used, which immunotherapy was used?
CellDex

Was patient placed in a clinical trial?
Yes

https://docs.google.com/forms/d/1ykR59zD2sg3hVlMVOXSn86HHYcqxWOSUdhcKNfRxvnA/viewanalytics#start=publishanalytics

8/15

1/7/2016

Brain Tumor Survival Rate Study ­ Google Forms

No

5

83.3%

83.3%

16.7%

Which trial(s) was the patient placed on?
CellDex

Alternative Medicine
Did the patient change their diet to a particular kind?
more fruits and vegetables; avoided simple sugars and carbs
I reduced sugar and dairy. Added certain supplements.
Cut down on breads and refined sugars
no suger, lots of veg, no meat. Trying a budwig diet
No, just focussed on eating lots of fresh fruit and veg.

Was Cannabis used?
Yes. CBD oil, and THC smoked.
No
CBD oil and pill form
yes CBD extract

Any other alternative medicine, therapies used?
Before treatment, I used supplements to boost my immune system and for liver support.
After treatment, I used supplements to boost the immune system and supplements to
reduce inflammation and increase energy levels.
Curcumin. Bowen technique.
Chinese medicine, mistletoe, high dosage vitamin C
zynergy and first elements

Additional Information
https://docs.google.com/forms/d/1ykR59zD2sg3hVlMVOXSn86HHYcqxWOSUdhcKNfRxvnA/viewanalytics#start=publishanalytics

9/15


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