IV Workshop Ichthyosis Madrid June 15th 2018 (PDF)

Dr. Angela Hernández Martín.
Dermatology Department.
Hospital Infantil NIño Jesús, Madrid, Spain.
Meeting coordinator
Dr. Antonio Torrelo Fernández.
Dermatology Department.
Hospital Infantil NIño Jesús, Madrid, Spain.
Dr. Raúl de Lucas Laguna.
Dermatology Department.
Hospital Infantil La Paz, Madrid.
Dr. Minia Campos.
Dermatology Department.
Hospital General Universitario Gregorio Marañón, Madrid
Profesor Rogelio González Sarmiento.
Biomedicine Unit. Department of Medicine and IBMC
University of Salamanca and CSIC, Salamanca

IV Ichthyosis
Workshop
Madrid, June 15th 2018
Hospital Infantil Niño Jesús, Madrid, Spain

Profesor Heiko Traupe
Dermatology Department
University of Muenster, Germany
Dr. Saturnino Santos.
ENT Department.
Hospital Infantil NIño Jesús, Madrid, Spain.
Dr. Natalia Blanco.
Ophthalmology Department.
Hospital Infantil NIño Jesús, Madrid, Spain.
Dr. Consuelo Pedrón.
Gastroenterology Department.
Hospital Infantil NIño Jesús, Madrid, Spain.
Dr. Margarita Cuervas-Mons.
Department of Pharmacy.
Hospital Infantil NIño Jesús, Madrid, Spain.
Leticia Fernández
Liaison nurse
Hospital Infantil NIño Jesús, Madrid, Spain.

Pediatric dermatologists, general
dermatologists, pediatritians, ENT
specialists, ophthalmologists, nurses
and all health professionals involved in
ichthyosis patients.

Program
10:00 - 10:05 Welcome
(Dr. Ángela Hernández-Martín)

Session 1
10:05 - 10:20 Two-year experiencie of a
multidisciplinary clinic of congenital
ichthyosis at the Hospital Infantil Niño
Jesús (Dr Ángela Hernández-Martín)
10:20 - 10:40 ENT complications in congenital
ichthyosis (Dr Saturnino Santos)
10:40 - 11:00 Eye complications in congenital
ichthyosis (Dr Natalia Blanco)
11:00 - 11:20 Nutritional issues in congenital
ichthyosis patients
(Dr Consuelo Pedrón)
11:20 - 11:40 Emollients for ichthyosis: is there
something new or should we continue
with old products?
(Dr Margarita Cuervas-Mons)
11:40 - 11:50 Role of the liaison nurse in a
multidisciplinary clinic of ichthyosis
(Leticia Fernández)
11:50 - 12:15 Coffee break

Session 2
12:15 - 12:45 G
 enetic counseling in congenital
ichthyosis (Universidad de Salamanca
(Prof. Rogelio González-Sarmiento)
12:45 - 13:15 P
 almoplantar keratodermas
(Prof. Heiko Traupe)

Session 3
15:00 - 15:20 The adolescent with a chronic
cutaneous disease
(Dr Raúl de Lucas)
15:20 - 15:50 Transition of the adolescent patient
with ichthyosis into adulthood
(Dr Minia Campos)
15:50 - 16:10 The adult patient with ichthyosis
(Prof. Heiko Traupe)
16:10 - 16:30 Ichthyosis patients and their reality
(ASIC)
16:30 - 16:45 Conclusions and adjourn
(Dr Ángela Hernández-Martín)

Coordination of the meeting
Dr. Ángela Hernández-Martín
Consultant Dermatologist
Hospital Infantil Niño Jesús, Madrid, Spain

Venue of the Meeting
Salón de Actos
Hospital Infantil del Niño Jesús
Avda Menéndez Pelayo, 65
Madrid, Spain

Registration
Free attendance

To register please send an email to
ahernandez@aedv.es by June 10th 2018

13:15 - 13:45 W
 hat´s new in keratinization disorders
(Dr Antonio Torrelo)
13:45 - 14:00 Questions & Answers
14:00 - 15:00 Lunch

With the support of: